Multiple Sclerosis: The Invisible Symptoms

Many Multiple Sclerosis (MS) symptoms are not outwardly visible. These invisible symptoms of MS make it difficult to diagnose at times. No matter the challenges a person living with MS faces, people around them cannot see what they are dealing with. We will discuss some of the common invisible symptoms of Multiple Sclerosis and how to manage them.

What is Multiple Sclerosis

It is essential for those around a person with MS to learn as much as possible to understand better what a person with MS is experiencing. When a family member is affected by MS, the entire family is affected. Once everyone is educated, families can work together to modify responsibilities and activities, and questioning whether symptoms are real will subside.

Multiple Sclerosis is a chronic inflammatory central nervous system disease accompanied by unpredictable symptoms. The cause of MS is unknown and happens when the protective tissue (myelin) around the nerves is damaged. Scar tissue forms, making the nerves unable to send messages to and from the brain.

Some of those symptoms can be visible, like hand tremors, slurred speech, or balance problems that can interfere with physical abilities and everyday tasks. However, other MS symptoms are not as obvious, but they can still profoundly affect how a person functions in the world.

Multiple Sclerosis is a disorder in which the body's immune system attacks the protective covering of the nerve cells in the brain, optic nerve and spinal cord.

Invisible Symptoms of Multiple Sclerosis

Since Multiple Sclerosis affects different parts of the nervous system, symptoms may be visible or invisible depending on which function is affected. Most people with MS can suffer from any of the following symptoms that are not apparent to others.

  • Fatigue
  • Mood disorders such as depression and anxiety
  • Cognitive disorders that affect the ability to remember things
  • Nerve pain
  • Muscular pain
  • Balance and coordination problems
  • Vision problems
  • Bowel and bladder issues
  • Sexual dysfunction

These symptoms can come and go, any of them can be present, and people often live with them in silence.

A woman sitting with hands around her knees suffering from depression related to Multiple Sclerosis.Effects of the Symptoms of Multiple Sclerosis

People living with MS can be highly affected by these symptoms, which can lead to any of the following effects on a person’s life:

  • Self-esteem issues
  • Confidence
  • Uncertainty
  • Frustration
  • Anger
  • Ability to live a full life

A spiral can develop if the symptoms are not addressed and managed.

Managing Multiple Sclerosis

There is currently no cure for Multiple Sclerosis, but there are medications, therapies, self-help techniques, coping strategies, and support groups to help address MS. And, since MS is different for everyone, keeping a journal of your symptoms may help you recognize what your MS is like when speaking to your doctor or health counselor. Describing symptoms clearly and how they impact your life is critical in creating an effective treatment plan.

SureCare Bladder Control PadsFor those with MS that experience bladder and bowel problems, embarrassment and anxiety can set in. People may significantly reduce their social and sexual activities, leading to depression and isolation.  Changes in diet and behavior can help, along with choosing the right incontinence products to help with dignity.

Physical handicaps are more apparent but can be just as challenging to manage as invisible symptoms. Understanding the symptoms of MS is hard enough, so managing them can be even worse. Pain, fatigue, and cognitive problems are complex and can be complicated to treat. Communicating your symptoms to your doctor can help you get a good diagnosis and treat the right issue.

In this inspiring interview, listen to Birgit Bauer, a Multiple Sclerosis Patient Advocate, share her story and personal advice on how people with MS can maintain their independence and live a dignified life.

Medical Supplies That May Help with MS Symptoms

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Multiple Sclerosis and Incontinence

Multiple Sclerosis and incontinence often are experienced together. The central nervous system controls many functions throughout the body, such as walking, thinking, and controlling various muscles. Multiple Sclerosis can cause damage to the central nervous system and produce a variety of symptoms, including vision loss, muscle stiffness, or even bladder and bowel dysfunction.

What is Multiple Sclerosis?

mend and women exhibiting different symptoms of multiple sclerosisMultiple Sclerosis (MS) is an autoimmune disease that affects cells in the central nervous system. For those with MS, not only is their immune system defending harmful bacteria and viruses again, but it is also attacking their body. Electrical signals are sent throughout the body by the central nervous system to control almost everything we do, and MS disrupts these electrical signals.

Those with MS can experience a wide range of symptoms, and this disease affects everyone differently. Although most of the symptoms are not visible to others, some are and can worsen over time.

Common Symptoms of MS

  • Walking problems
  • Vision problems
  • Bladder and bowel dysfunction
  • Fatigue
  • Cognitive difficulties (attention, learning, and memory)
  • Mood changes
  • Muscle stiffness
  • Numbness and tingling
  • Pain in arms and legs
  • Hot and cold sensitivity
  • Weakness or poor coordination

How Multiple Sclerosis Can Affect the Bladder and Bowels

There is a coating on the nerve endings called the myelin sheath that protects the nerve cells. When the myelin sheath is damaged due to multiple sclerosis, electrical impulses transmit to the brain much slower. This nerve damage affects how the body interprets signals between the brain and the bladder and bowel. Coordination of the muscles that control holding and emptying the bladder and the bowels is disrupted, leading the incontinence.

Bowel or fecal incontinence can result from weak sphincter muscles from MS or can be from constipation. When a person is constipated from MS, it can be from the medication or lack of mobility and lead to overflow incontinence.

Some of the various types of incontinence a person with Multiple Sclerosis may experience are:

Overflow Incontinence

When the bladder does not fully empty, urine can leak. Those with overflow incontinence from MS are unable to squeeze the muscles needed to empty the bladder due to nerve and muscle damage.

Urge Incontinence

When a person feels a sudden urge to use the restroom and has to rush to get there, they are experiencing urge incontinence. The nerves linked to the bladder have been damaged with MS and cannot communicate quickly enough to the brain.

Stress Incontinence

When usually going about your day and having an unintentional loss of urine, you experience stress incontinence. You may also notice this leakage when you sneeze, cough, laugh, or lift something heavy. The pelvic floor muscles have weakened from MS, so stress incontinence is often experienced.

Constipation

When you are not emptying the bowels as often as you usually would is one of the signs of constipation. Some medications can often cause constipation that lasts for days and be very painful. Abdominal bloating, decreased appetite, and fatigue are all signs that you may be constipated, and you should speak to your doctor about treatment.

Fecal Incontinence

Fecal incontinence or bowel incontinence is when a person cannot control regular bowel movements. When the sphincter muscles are damaged from multiple sclerosis, the ability to delay emptying the bowels is disrupted.

Treatment Options for Incontinence Related to Multiple Sclerosis

Treatment options are available to help improve incontinence for those with multiple sclerosis. There are many conservative methods. However, if those are not effective, then there are medications available. If incontinence symptoms are more severe, you may be recommended surgery as a last resort to improve your quality of life.

Conservative Treatments for Incontinence

Diet and Lifestyle

Bladder and bowel health is critical when it comes to incontinence. Eating a well-balanced diet that consists of fiber and plenty of fluids can help with regular bowel movements and avoid constipation. Fluids like carbonated beverages, caffeine, and alcohol can irritate the bladder, so it is best to avoid them.

Establishing a Routine

Establishing a routine can help to avoid accidents. It might help to go to use the bathroom every few hours and after every meal. Keeping a pattern of eating and drinking at the exact times can also help. In the evening, make sure to have your last drink two hours before bed. This practice may help avoid an overnight accident.

Retraining the Bladder or Bowels

Bowel retraining and bladder retraining is a treatment for incontinence that can work well for those with persistent diarrhea, constipation, or nerve damage due to MS. With bowel retraining, the goal is to aim for consistency of the stool and regularity of the movements. Gradually increasing the time between bowel movements, you are retraining the sphincter muscles, which may help make it easier to hold on.

When retraining the bladder, this process also involves gradually increasing the amount of time between each visit to the bathroom. Both bowel and bladder retraining takes time and patience. Many people find that keeping a Bladder Journal or Bowel Journal can help. This journal can also be shared with your doctor to determine a treatment plan.

Incontinence Products

Assortment of incontinence productsToday, there are many incontinence products on the market that are designed to address light to severe urinary or fecal incontinence. These incontinence products can help provide more comfort, security, and protection for your clothing, bedding, furniture, and auto.

Incontinence products are available in a wide variety of absorbency levels, sizes, and styles. And, these products are offered for all genders and ages. Some of the categories include:

  • Incontinence Protective Underwear resemble regular underwear and offer more traditional and discreet protection.
  • Incontinence Briefs are also called adult diapers with refastenable tabs. This incontinence product is a more secure and absorbent option.
  • Incontinence Liners and Pads are generally used for light to moderate incontinence and are inserted into regular underwear as an added layer of protection.
  • Incontinence Belted Undergarments are much longer than a typical pad and feature a belt for additional security.
  • Incontinence Bed Pads, Underpads, and Chux are an excellent option to protect everything from your bed, furniture, car seat, or use as a puppy potty training pad.
  • Incontinence Clamps are used to help treat urinary incontinence in men. This device blocks the flow of urine. Many men use them to control urinary incontinence after prostate surgery, obesity, old age, or those who have diabetes.

Visit our Incontinence Product page for more information and to order these products. Our caring, specially trained Product Advisors can help you decide which option is most suitable for you.

Intermittent Catheters

collage of intermittent and Foley cathetersWhen a person cannot fully empty their bladder independently, they may be given the option to use an intermittent catheter.  By using an intermittent catheter, it can help eliminate overflow incontinence. A thin, flexible tube is into the urethra to drain urine out of the bladder. All catheters are designed to be sterile, one-time-use, and require a valid prescription from a physician. There are various types of catheters available, and depending on your unique needs, your doctor will know what is best for you.

Foley Catheters or Indwelling Catheters

Depending on the circumstance, a Foley catheter or indwelling catheter is inserted into the bladder and remains there for either a short or prolonged period. A balloon filled with sterile water is incorporated near the tip of the catheter tube. Once the catheter is inserted and inflated, this balloon prevents the Foley catheter from slipping out of place. Typically, a leg bag or urine drainage bag is connected to this type of indwelling catheter.

Percutaneous Tibial Nerve Stimulation

A treatment method that directly stimulates the nerves responsible for bladder and bowel control is called Percutaneous Tibial Nerve Stimulation (PTNS) and can treat incontinence. The tibial nerve is near the ankle, and during PTNS, a small needle connected to a stimulator device is inserted at this point. Impulses travel up the spine and target nerves in the spinal cord to retrain the bladder and pelvic floor muscle function. Some MS patients have found this helpful.

Using Medicine to Treat Incontinence

Laxatives

Sunmark ClearlaxMultiple sclerosis can leave some immobile, which can lead to constipation and ultimately overflow incontinence. Over-the-counter laxatives are available to help treat incontinence and come in various options such as suppositories, powders, and liquids. Laxatives are usually fast-acting to provide relief for irregularities. Make sure to you speak to your doctor or pharmacist about which type of laxative is best to use.

Antidiarrheal Medication

Antidiarrheals work to slow down the production of loose stool or diarrhea. Over-the-counter medications such as Imodium are available for purchase to help with the discomfort of repeated liquid bowel movements. However, it is essential to note that an underlying issue causes diarrhea, and these medications may offer only temporary relief.

Anal Irrigation and Enemas

Anal irrigation or rectal irrigation is a method that involves emptying the bowel by using a specialized pump, water, and irrigation tube. Anal irrigation is an effective alternative to conservative treatments like suppositories and laxatives. Anal irrigation can help manage chronic constipation and fecal incontinence.

Enemas are a quick, easy, and fast-acting treatment used to clear impaction from severe constipation. Using enema products involves administering a solution such as water and sodium phosphate to clear the bowel.

Antispasmodic Medications

Spasms of the bladder muscle can often be treated by the use of antispasmodic medications. These medications work to relax the muscles of the gut. They can help reduce urge incontinence associated with MS. Antispasmodic medications belong to a group of medicines known as antimuscarinic or anticholinergic drugs. A doctor must prescribe these medications as they are not suitable or safe for some people.

Injectable Therapies

Injectable therapies are available as a treatment that includes the non-surgical injection of a “bulking” material into the urethra to improve leakage. This material thickens the tissues, which then prevents soiling and improves bladder control.

Surgical Treatments for Incontinence

Suprapubic Catheters

As an alternative form of long-term catheterization, a suprapubic catheter can be used to treat incontinence. This type of catheter involves a minor surgical procedure to place a tube directly into your bladder through your abdomen. The suprapubic catheter can then be attached to a leg bag or urinary drainage bag to collect urine. It can be more comfortable than a Foley catheter and may be less likely to cause infection.

Botox

Botox is a potent neurotoxin that causes muscle paralysis by blocking the electrical impulses to a nerve. This type of incontinence treatment is relatively new in terms of treating an overactive bladder. If all other medications have failed to improve your condition, Botox may be a considered treatment by your doctor.

Bladder Augmentation

If medications and conservative treatments have failed to treat your incontinence, your doctor may discuss a bladder augmentation surgery may be an option. There are several ways this operation can be performed, but it is considered major surgery and involves cutting the bladder open. If you consider this option with your doctor, it is essential to ask as many questions as possible and take notes of your conversation.

Sacral Nerve Stimulation

Sacral Nerve Stimulation or Sacral Neuromodulation (SNM) can help restore normal bladder or bowel function by addressing the communication between the brain and the bladder and bowel. A device is implanted under the skin in the upper buttock. This device helps correct the messages that run along the nerve pathways that may be causing incontinence symptoms. As with other incontinence surgical treatment options, it should only be considered after medication and conservative incontinence treatment options have been exhausted.

Colostomy

For those with Multiple Sclerosis and incontinence, if fecal incontinence is severe, constipation is brought on from immobility, or dexterity issues have developed, your doctor may recommend a bowel diversion in the form of a colostomy. A small incision is made in the abdomen, and a section of the colon is pulled to the surface, forming a stoma. The stoma is an artificial opening that an ostomy skin barrier and ostomy pouch attaches to for waste collection. Colostomies may be temporary or permanent, so this treatment is typically considered in severe cases where all other treatment options have failed.

Where to Buy Incontinence Products

shop on Personally Delivered website, save an additional 5%, earn 3% cash back at teh end of the year based on purchasesWe carry a wide variety of incontinence products at Personally Delivered by many trusted brands like Attends, PBE Tranquility, Prevail, First Quality, Depend, and more. Incontinence is not the same for everyone, and that is why we have Product Advisors to help you navigate the purchasing process based on your unique needs.

Not only do we offer a wide range of incontinence products by absorbency, size, and style, we can help make it easy for you to get the products you need to be delivered right to your door when you need them. With our Automatic Delivery Program, you will save an additional 5% on each shipment and get 3% back at the end of the year. There is no commitment, it is hassle-free, and you can cancel at any time.

What Resources Are Available for Those Affected by MS?

For those affected by Multiple Sclerosis and incontinence, there are many resources available.

Multiple Sclerosis and incontinence often go hand-in-hand, but as you can see, there are many options available for treatment. We are here for all of your incontinence needs at Personally Delivered. If you need assistance choosing the right incontinence products for your unique situation, our Product Experts are just a phone call away.

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